A network Chain using mainly the Internet, between people or group of isolated people directly or indirectly affected by the same rare disease.

E- mail links of concerned people			Registration on the site !
	Research by disease name.			Registration form (Recommended).
	Research with the disease list already registered on the site.			E-mail registration ( send us a disease name and your first name).

Description of rare diseases	European Organisation for Rare Disorders	Sistema de Información de Enfermedades Raras en Español	National Organization for Rare Disorders	Site constructed by a French Association

This site has been also constructed with the help of Kennedy's Disease American Association.
With the support of the International Cutis Laxa
...and of the International Scleroderma Network
and Families of Spinal Muscular Atrophy

5000 rare disorders.
Millions of patients still living in isolation.

A group of patients and families has set up a web site to help them get together, exchange views, have access to information, and testify.
Our goal is to link through the web isolated patients and families affected by a rare disorder, or when no organisation exists.