|
U.K
|
Polychondritis
Educational Society, Ltd.
|
||
|
U.S.A
|
Rare
chromosome disorders
|
||
|
U.S.A
|
Diabetes
Insipidus Fundation
|
||
|
Netherlands
|
Rare
chromosome disorders
|
Links with others des
organizations for parents or care providers of a child with any rare disorder
:
Parent to Parent Network
Rarediseases.about.com
The Noonan Syndrome Support Group
Alström Syndrome International
and in U.S.A : 
Self-Help
Groups
Provides
: local non-profit “self-help support group clearinghouses” worldwide;
suggestions on starting both community and online groups; reviews of research
studies on groups; a registry for those trying to start new national or international
support networks that don't yet exist in the world; and a keyword-searchable
database of over one thousand national, online, and model "self-help" support
groups for most any specific illness, disability, addiction, bereavement situation,
parenting, caregiver concern, abuse, or other stressful life situation.