At the begining of this new site, .....some others Associations are helping us...we are happy to add these here :

 

Canada Rare chromosome disorders http://www.chromodisorder.org info@chromodisorder.org
U.S.A Diabetes Insipidus Fundation http://diabetesinsipidus.maxinter.net  
Netherlands Rare chromosome disorders http://www.11q.org info@11q.org

and U.S.A

Self-Help Groups